Draft:June is Vitiligo Awareness Month
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Vitiligo Awareness Month
[edit]Vitiligo Awareness Month is observed annually in June to promote understanding of vitiligo, a chronic autoimmune skin disorder that causes depigmented patches on the skin. The awareness month includes educational campaigns, community-based events, and legislative efforts intended to reduce stigma and support individuals affected by the condition.
Overview
[edit]Vitiligo affects an estimated 1–2% of the global population. Although it is neither contagious nor life-threatening, the condition can lead to psychological and social challenges due to public misconceptions and its visible appearance.
Origins and Purpose
[edit]Vitiligo Awareness Month was initiated in the state of Georgia, United States, through the efforts of the National Vitiligo Bond Inc. Foundation (NVBIF or Vitiligo Bond). The nonprofit organization was founded in 2010 by Natasha Pierre McCarthy, an educator and advocate living with vitiligo. NVBIF was established to raise awareness, address bullying related to visible differences, and provide community support for individuals living with the condition.[1]
The foundation’s mission is to foster acceptance, visibility, and empowerment for people with vitiligo. Through public education, advocacy, and community programming, NVBIF seeks to change perceptions and increase support for those affected.
Programs and Initiatives
[edit]Since its founding, NVBIF has organized various educational and outreach programs, including:
- Vitiligo 101 forums at Emory University
- School-based anti-bullying initiatives
- Storytelling and mentorship programs for youth
- The Vitiligo TouCan 5K, an annual event in Atlanta open to both in-person and virtual participants[2]
These initiatives aim to improve public understanding and foster community among individuals affected by vitiligo.
Legislative Recognition
[edit]In 2015, former U.S. President Barack Obama acknowledged vitiligo following advocacy efforts by NVBIF—reportedly the first such presidential acknowledgment of the condition.[3]
At the state level, Georgia House Resolution 725 was passed in 2025, formally recognizing June as Vitiligo Awareness Month in Georgia and commending the work of NVBIF.[1]
On a federal level, U.S. Representative Hank Johnson (GA-04) has introduced multiple resolutions in the House of Representatives to designate October 17 as National Vitiligo Awareness Day, including H.Res. 636 and H.Res. 792.[4]
These resolutions highlight the condition’s impact on mental health, especially among children.[5]
Expansion and Advocacy
[edit]NVBIF has contributed to growing awareness at both national and international levels. The foundation has supported advocates in more than 20 U.S. states in securing gubernatorial proclamations recognizing Vitiligo Awareness Month. These proclamations have served as platforms for local education and advocacy.
Additionally, NVBIF’s model has inspired similar awareness efforts abroad, with advocates adapting its approach to fit various cultural contexts.
World Vitiligo Day
[edit]A key observance during Vitiligo Awareness Month is World Vitiligo Day, held annually on June 25. The day was proposed in 2011 by Steve Haragadon and later launched by Ogo Maduewesi, founder of the Nigerian-based Vitiligo Support and Awareness Foundation (VITSAF). The date commemorates the passing of pop icon Michael Jackson, who lived with vitiligo and died on June 25, 2009.
In 2012, the Vitiligo Research Foundation (VRF) launched 25june.org to promote World Vitiligo Day and advocate for its recognition by the United Nations.[3]
Community Engagement
[edit]Through events such as the Vitiligo TouCan 5K Run/Walk, NVBIF has brought together patients, healthcare professionals, families, corporate sponsors, and community advocates. These events emphasize physical wellness, social inclusion, and peer support.[2]
Impact
[edit]Vitiligo Awareness Month has contributed to:
- Increased public education about the condition
- Greater emotional and peer support for affected individuals
- Legislative recognition and policy advocacy
- Reduced stigma and bullying in schools and communities
The observance has evolved from a local advocacy initiative into a broader movement supporting people with vitiligo in the U.S. and internationally.
See Also
[edit]References
[edit]- ^ a b "House Resolution 725". TrackBill. Retrieved 21 June 2025.
- ^ a b "Running Together: How the Vitiligo TouCan 5K is Creating a Global Sisterhood of Support". Rich Woman. 5 June 2025. Retrieved 21 June 2025.
- ^ a b "Thank You President Obama". Vitiligo Bond. 25 June 2015. Retrieved 21 June 2025.
- ^ "Reps. Johnson, Blunt Rochester Re-introduce Resolution to Designate National Vitiligo Awareness Day". U.S. House of Representatives. 17 October 2023. Retrieved 21 June 2025.
- ^ "Congressional Record, Extensions of Remarks". Congress.gov. Retrieved 21 June 2025.
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